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It's About Families!
Mentor Program
The NUCDF Mentor Program was developed to provide newly diagnosed families an opportunity to receive personalized guidance, education and support specific to their family and disorder situation. Family Mentors are carefully chosen from families in our UCD community according to their depth of knowledge and experience living with, caring for and managing a child with a UCD. Our Mentors are dedicated to helping families learn more about their child’s specific disorder, the rationale behind treatment and management regimens, discuss concerns and issues, and provide suggestions on how to work effectively with the medical professionals caring for their children.
If you would like more information on the NUCDF Mentor Program, or wish to be matched with a Family Mentor, please send your contact information and a brief description of your situation, including disorder, to the contact below and we will contact you as soon as possible to discuss your needs.
Click here to connect with the Family Mentoring Program
Family Networking Program
Our Family Networking Program is designed to enable families to communicate and network with other UCD families in their geographical area, or with other families affected by their specific disorder.
If you would like to receive information on families in your area living with UCD, please contact:
Click here to connect with the Family Networking Program
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2003 Golf Tournament, Florida |
| I have a 17-month-old daughter with OTC deficiency. She was finally diagnosed at 5 months of age. NUCDF held our hands this last year. I would be lost without their knowledge, education and emotional support. |
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