Medical Information on Urea Cycle Disorders

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Brain Power

Preserving it is what our fight is all about!

 

 

NUCDF Conference Presentation Series

Learn more about UCD

Optimizing Nutrition to Improve Health in UCDs:  The UCD diet is one of the pillars of management. UCD expert dietician, Debra Hook, explains the basics, provides healthy choices, and how to manipulate the diet to to improve stability and overall health.

 

Straight Talk about Thinking Straight: Children and adults with UCD often have problems with executive function (cognition, focus, etc.) due to alterations in brain chemistry caused by the disorder. This video explains these effects and provides helpful information to improve function.

Effects of High Glutamine Levels on Outcome: Elevated glutamine levels are a sign of metabolic instability that can negatively affect brain function and performance, and lead to elevated ammonia levels. Dr. Uta Lichter reports on the results of a recent study.

When Food is Medicine; Oral Feeding Principles for Families Considering    G-tubes: Children with UCD commonly experience feeding issues that contribute to metabolic instability. This video explores oral feeding principles and the common questions and issues parents have when making decisions about G-tube placement.

UCD Research: Urea Cycle Nutrition and Immunity Study

Dr. Peter McGuire outlines this important study to investigate the effects of the UCD diet on immune response. The study is currently enrolling participants (download study flyer)

 

Early Developmental Intervention

Baby Steps: Learn the Signs Act Early. Flash Player 9 is required.

Baby Steps -- Learn the Signs, Act Early: Helps parents measure their children's developmental progress by monitoring how they play, learn, speak and act. Early recognition of developmental disabilities is critical for obtaining early intervention for children with urea cycle disorders.

More Videos:
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Plate Full of Color: Teaches kids the value of eating a variety of colorful and healthy foods.
Put Your Hands Together: Learn how to stop the spread of colds and flu and stay healthy.