 New! The Wall Street Journal: Addressing the Fallout of Newborn Screening - Government and Researchers Seek to Reduce False Positives, Improve Physician Education and Follow-Up for Families |
| New! Interactive CME seminars Behavioral Disorders - EP Live Online |
| New! A Family Guide to Respite: Designed to increase parent and provider knowledge of respite programs and partnerships - EP Live Online |
List of Low-Protein Food and Formula Suppliers - includes information on low protein food and formula suppliers, as well as vendors of products that make low protein cooking easier and low protein cookbooks. .pdf document available here |
| State Laws and Policies on Food and Formula Coverage |
| Accommodating Special Dietary Needs in the School Setting - pdf document outlining requirements for accommodation of special needs at school. |
| Care Notebook - The Care Notebook offers 39 forms families may fill in to help keep track of their child's health care information. Families may use these pages to keep track of appointments, health care and diets, and to create a list of their care team and resources and summary of their child's abilities and care needs. |
| My Family Health Portrait - The Surgeon General's Family History Guide is a powerful tool to help families understand their risk for disease based on family history and assist in making decisions about individualized care. Useful in tracking family history of OTC deficiency. |
| USDA Nutrient Database - Food values including protein, fat carbohydrate and calorie content as well as amino acids for most foods. |
Cambrooke Foods - Excellent low-protein foods and recipes. |
| Dietary Specialties Products - Low-protein food supplier. |
| Taste Connections - Excellent Low-Protein mixes and recipes. |
| Lowprotein.com - Recipes, facts and resources. |
Maternal and Child Health Library - A virtual guide to maternal and child health information. It offers a wide variety of electronic resources, including databases, publications, resource lists, Web links, the MCH Alert (electronic newsletter), and other resources developed for health professionals, families, and consumers. |
| Packets for Parents - A program that provides free newborn screening
packets to expectant parents in the United States who are unable to pay for
them. Certain restrictions apply, and quantities are limited to a specific
number of packets each month. |
