Urea cycle disorders are considered a "rare disease" affecting a small population of individuals. Most medical research is conducted for "large population" diseases, and thus resources and funding are appropriated and allocated according. It is only by standing together and showing our strength in numbers that our children will be recognized and our UCD families will have a strong enough voice to stimulate awareness and interest in research for urea cycle disorders - research that may one day, one year, save our children from this disorder. We are accomplishing a great deal, but there is much, much more to be done. We are on our own. 

You do make a difference in saving your child, our children, and those yet to be born.

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