Join to receive urea cycle disorder treatment and research updates, information and educational resources, help and support.

Membership Benefits to families with urea cycle disorders

We're happy you are joining us in our fight to conquer urea cycle disorders.  NUCDF is a volunteer non-profit organization of families, friends and medical professionals dedicated to the identification, treatment, and cure of Urea Cycle Disorders. Membership benefits include our newsletter, research and treatment updates, networking program, our annual conference, information and educational resources, and the NUCDF national database. By sharing, caring, and supporting, our members can make a difference in each others lives.

Please complete the following information and press "Submit Form" to transmit the information.  You will then be directed to a page where you can make a membership contribution through a secure server using Visa, MasterCard, American Express or Discover. A membership contribution is not a condition of membership, but we do appreciate and need your support to achieve our mission. If you'd like to mail this form with a personal check, please print this form and mail it along with your contribution to:

  NUCDF
  75 S. Grand Ave.
  Pasadena, CA 91105

Please note: NUCDF takes your privacy very seriously.  We will not  release information to any outside party without your explicit written consent.

Name Title
Department   Organization
Street Address   Address (con't)
City   State/Province
Zip Code/Postal Code   Country
Home Phone Work Phone
EMail      
Professional Membership   Family - Disorder
 
Preference for Receiving Newsletter   EMail address for Newsletter
Completing the following questionnaire is optional. However, it will assist us in understanding and supporting the needs of our urea cycle families and determining prevalence and outcome of the disorders.
Do you have a child that has been diagnosed with a Urea Cycle Disorder? Yes No
If you answered 'Yes' to question A, please proceed to question B. If you answered 'No', why have you decided to join the NUCDF?
B. Please complete the following information regarding all of your children, including those not affected by UCDs:
Child #1   Type of Disorder:
Age at Time of Diagnosis:
Is this child Living? Yes No   Current Age: Year of Birth:
Year of Death Age at Death: Cause of Death:
Child #2   Type of Disorder:
Age at Time of Diagnosis:
Is this child Living? Yes No   Current Age: Year of Birth:
Year of Death Age at Death: Cause of Death:
Child #3   Type of Disorder:
Age at Time of Diagnosis:
Is this child Living? Yes No   Current Age: Year of Birth:
Year of Death Age at Death: Cause of Death:
If you have been diagnosed with a urea cycle disorder:
Type of Disorder:   Age at Diagnosis: Current Age:
Our goal is to educate medical professionals and provide update information about new treatments, tests, etc. Please provide your physician's contact information to be included on the physician mailing list:
D. Name of treating geneticist/metabolic specialist:
Name   Title
Department   University/Hospital
Street Address   Address (con't)
City   State/Province
Zip/Postal Code   Country
Phone   Fax
EMail   Web Site
 
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NUCDF. Copyright (C) 2011 National Urea Cycle Disorder Foundation. All Rights Reserved.

Revised: 3/17/2011