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 Mark Batshaw, M.D., Geneticist, Developmental Pediatrician, Children's National Medical Center, Washington D.C., Primary Investigator for Rare Disease Clinical Research Network for UCD, "Rare Disease Clinical Research Network for UCD - Update on Research Project and Clinical Trials." |
| M. Cullen Gibbs, Ph.D., Pediatric Neuropsychologist, Children's National Medical Center, Washington, D.C., "Neuropsychological Implications of Urea Cycle Disorders." |
| Andrea Gropman, M.D., Assistant Professor, Direct Imaging Study, Georgetown University, Washington, D.C., "Neuroimaging: Studying the Brain and Effects of Hyperammonemia on Cognition." |
| Brendan Lee, M.D., Geneticist, Baylor College of Medicine, Houston, TX, "Advances in UCD Treatment and Management." |
| Debra Geary Hook, MPH, RD, Metabolic Dietician/Clinic Coordinator, UC Irvine Metabolic Team Center, Irvine, CA, "Nutritional Management of UCDs." |
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“Loads of compliments for your organization and your website: it’s clear, honest, positive as possible and it really gives us a good start in the (for us) strange world of parents with a UCD diagnosed child.”
N.J., Netherlands |
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