2013 Urea Cycle Disorders Virtual Conference

2013 NUCDF Annual Conference

A Live Web Event
Saturday, July 20, 2013

10:45 AM - 5:00 PM Eastern Standard Time

Simulcast in Español!

DOWNLOADS

Handouts

Please download/print the handout for each presentation so you can follow along during the conference.

Agenda

Brendan Lee, MD, PhD

No Handout

Andrea Gropman, MD

Understanding the Effect of UCD on Brain Function and Behavior

Susan Waisbren, PhD

Neuropsychological evaluations in UCD - What do they mean and what can we do about it?

Sandesh Nagamani, MBBS, MD

Why is nitric oxide important in UCD? Nitric oxide supplementation in argininosuccinic aciduria

Peter McGuire, MS, MD

Metabolism, infection and immunity in UCD

Debra Geary-Hook, MS, RD, MPH

Eating for Life - Optimizing Stability and Health in UCD

Uta Lichter, MD

Do High Glutamine Levels Negatively Affect Outcome?

Soledad Kleppe, MD (En Espanol)

Defectos del ciclo de la Urea, Perspectiva en tratamiento y seguimiento para America Latina

 

The only UCD event of its kind in the world.
We're going virtual this year! Don't miss this Conference!

For the first time, our NUCDF Annual Conference is being held online as an "international web conference" event.  No travel, no expenses, no stress!  No matter where you live, you can be part of this unique opportunity for UCD families and medical professional to learn about new advances in research, new treatments, and cutting-edge management insights that can help improve the lives of children and adults with UCD.

How the Virtual Conference works

You can attend via a computer or mobile device with an internet connection, or just by calling in on a telephone line.  That's great news for families who have never been able to attend our conference before! You don't have to be an internet wizard or techy person. When you register, you will receive instructions on how to access the live conference webinar on your computer via a web browser (Internet Explorer, Chrome, Firefox, Safari, etc.) or use the dial-in number to listen in. Familias que hablan español pueden utilizar un link especial para acceder a la transmisión simultánea español. Registrants will be able to ask questions of the speakers via a chat feature. We'll also have activities in the days before and following the conference - forums, discussions and mini-sessions for everyone to participate in!

Knowledge - virtually

Working together, our NUCDF families and international community of committed researchers and medical professionals are making a major impact in advancing the understanding of UCDs, accelerating research, and improving outcomes in children and adults with UCD.  Research for UCDs has increased by over 400% in the last four years! Our virtual conference will bring you up to date on the latest advances in UCD from this research. 

Stay informed

You'll want to stay up to date on the latest developments, no matter where you live.  If you are not already a member of NUCDF, please accept this personal invitation to join us, stay informed and be part of our international UCD community!  Membership is free, but the benefits are priceless. Let's keep research momentum going. Together, we WILL find a way to end the devastating effects of UCD!

 

WEBCONFERENCE PROGRAM AT A GLANCE (subject to change)

Saturday, July 20

10:45 AM - 5:00 PM

Eastern Standard Time

Keynote address and General Session presentations from top researchers and clinical experts in the field of UCDs. Topics include:

  • Keys to Stability - Dietary Management of UCD
  • Liver Transplantation for UCD
  • Improving Outcomes - updates on optimizing treatment and management
  • Understanding the effects of UCD on brain function and behavior
  • Practical tools for improving performance and managing difficult behavior
  • New findings about the oxidative stress, nutrition and immunity
  • UCD advances and new insights from clinical research studies
  • International collaborations to accelerate research for UCDs
  • Special session on treatment and management for families in Latin and South America.
  • And More!

  Our Dream is a Cure, and we can't
rest until we find it...


 

 

Urea Cycle Disorder Family

No matter what language you speak, Together, we can conquer UCD!

Juntos, somos una familia!
Ensemble, nous pouvons vaincre UCD

Gemeinsam können wir erobern UCD

Μαζί, μπορούμε να κατακτήσουμε UCD

Insieme, possiamo conquistare UCD

Вместе мы можем победить UCD

Tillsammans kan vi erövra UCD

Saman getum við sigra UCD

UCD معا، يمكننا قهر

一緒に、我々はUCDを征服することができます

با هم، ما می توانیم UCD تسخیر


Conference Quick Links

Online Registration

Selected Speaker Bios

Downloads

Conference Flyer

Full Agenda

Contact us:

Email: 2013Conference@nucdf.org

Phone: (626)578-0833


Comments from our UCD online community:

"Looking forward to the virtual conference! I would like to hear about learning issues that the children may be facing and what therapies can be used to help improve their outcome. I always love the great nutrition tips, too!"

"I'd like to hear about the impact of UCD as we age - I think I am one of the oldest here in our group with OTC, I'm 54 years old."

"I'd been thinking we would have to wait a couple of years until our boys were older to attend a conference, but now we can attend virtually this year! Looking forward to it"

"The virtual conference is a great idea!"

"We are very much looking forward to the virtual conference and the wealth of information I know it will contain."

"Can't wait!"

Let us know what you want to hear about at the conference: 2013conference@nucdf.org

NUCDF Hoops for Hope Classic Cure the Cycle Challenge