2007 NUCDF Family Conference DVD Now Available

NUCDF 2006 Family Conference REsource CD

The 2007 Family Conference DVD is a video of the conference speaker presentations and includes :

  • Keynote Address "Advancing on the Rare Disease Research Road," Stephen C. Groft, Director, Office of Rare Diseases, National Institutes of Health

  • "Urea Cycle Disorders Consortium Update -- UCD Longitudinal Study and Expanding Research," Mark Batshaw, M.D., Children's National Medical Center

  • "The New Horizon -- Studying the Effects of UCD on Brain Function," Andrea Gropman, M.D., Children's National Medical Center

  • "Improving Outcomes -- New Insights in Urea Cycle Disorder Treatment and Management," Brendan Lee, M.D., Ph.D., Baylor College of Medicine

  • "Living with UCD -- Insights for Parents and Healthcare Professionals," Emily Rohrer, Adult with OTC Deficiency, Canton, OH

  • "Understanding Nutritional Managementfor UCD," Debra-Geary Hook, MPH, RD, UC Irvine Metabolic Team Center


This valuable CD is available for only $27.00, including shipping and handling.

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At the 2005 NUCDF Conference in Houston and over the past five years we have learned so much about UCDs and acquired many great strategies from the NUCDF team that continually help us with our son who has Citrullinemia.

Thank you all for your resolute dedication to our cause.  The impacts of the NUCDF and its outstanding research teams have been indispensable our family.  Hopefully our feedback can help you know the information that is valuable to us.

T.B., USA